Data sharing

As long as I can check the data and ask for alterations (which requests may have to be evidenced) I am happy for public service bodies to share it. The NHS obsession with confidentiality has been a real problem with productivity in health services.

I sometimes getting too many appetizing for various offers and introducing ... from who it all do coming? Why local authorities did not investigating it?

I am disappointed with both the question raised and the survey as they both simplify a complex discussion into a simple yes / no answer.

How can you agree in the same statement that providing sensors on bin-weights for collection is that same as collecting personal data about medical conditions and sharing that with the whole NHS staff.
Information security is something that relates to individuals with specific needs having access to data and being trained and trusted to act responsibility.

There is a lot of trust in traditional paper processes but by digitising this it increases the risks as well as making things more efficient. Patient details in a poorly designed system can be accessed by any members of staff in the NHS which would not be consistent with good security practices. Do I trust companies who develop systems and staff in the NHS (just an example) to look after my data properly - I dont know, what are their security standards, how well do they train their staff including temps, do they have an Information Security manager in their management team?

This area is complex and worth of proper dialogue and policy and I fear this highlights how far we have we have to go.

Accept that in current society there will be data sharing but want to see this kept to a minimum.

Like others here, I certainly do not trust commercial entities to protect data and to use it in the ways originally requested. If security and ethics were a guaranteed then there would be no issue. Sadly that is not the position we are in today.

Much of what is required is not as directly 'personal' as it seems. The weight of my wheelie bin is not an issue. My usage of NHS service is. Too often these types of data are conflated as 'personal' and we need, as the survey tried, to be more definitive and prescriptive about categorisation.

No to both questions unless the issue of who owns the data and who holds the data is scrupulously addressed. The sharing of citizen's data with the NHS runs a very real risk because the NHS has already been found to have released private data of individual patients to private sector research and Pharma corps without permission - its record on data ownership and protection is therefore already very poor . More generally UK councils contracting with and sharing data with private sector companies on major transport, environmental and similar projects have found the latter now own the data and they cannot get back ownership and control.

No. I don't want data about my health to be shared with any body or person; the risk of misuse is too great. And even if I would, for example trust the present Mayor with some data, he can always be replaced by a thoroughly untrustworthy office holder

Absolutely no way! The state has shown that it is neither able to secure personal data not to do what it promises when it comes to not snooping and generally abusing the data it collects. How about the NHS's proposal to sell personal data against their promise to keep it secure? Big data and the routine snooping on individuals' 'private' communications and browsing history fundamentally shifts the power balance between the state and the individual and must be resisted. And you suggest we should voluntarily share data with the government? No.

Its ok as far as I am concerned to share between council and NHS to share. I have my doubts as to this information will always be used constructively or propaganda purposes.