Data sharing
Do you trust local authorities and public services to share data with each other or with the private sector?
Do you trust local authorities like your council and public services such as the NHS, to share data with each other to improve services?
Do you trust them to share your data with the private sector to meet city challenges, e.g. waste and recycling collection?
Why or why not?
The discussion ran from 13 March 2018 - 14 September 2018
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Log into your accountPeteH
Community Member 7 years agoI would like to be able to say yes as data can be useful in ascertaining a general consensus and understanding priorities within the community. In health care, it might also be instrumental in helping to determine what is good for us or...
Show full commentI would like to be able to say yes as data can be useful in ascertaining a general consensus and understanding priorities within the community. In health care, it might also be instrumental in helping to determine what is good for us or bad for us in preventing or curing diseases. However, I'm afraid I have no faith in how confidential data might be used as it is clearly the case that this government is wedded to the private sector and, in particular, is allowing privatisation of the health service by stealth. Suffice to say, commercial operations are less ethical when it comes to the use of personal data than a genuinely public service organisation might be. Sadly, therefore, lack of trust will have to mean lack of data provision!
Show less of commentAnonymous - account deleted
Community Member 7 years agoI am unconvinced that there is a need to share my data in the public sector, or that it could be done with adequate security. I am even more concerned at the prospect of my data being shared with private sector bodies, either directly, or...
Show full commentI am unconvinced that there is a need to share my data in the public sector, or that it could be done with adequate security. I am even more concerned at the prospect of my data being shared with private sector bodies, either directly, or via a public sector body such as NHS.
Show less of commentcardriver
Community Member 7 years agoI would never trust any of them with my personal data - they will just use it for their own means. As others have said, If I had to the data would have to be very restrictive and many re-assurances about my security.
Ijip
Community Member 7 years agoIf a GP refers you to a hospital or a hospital discharges you back to you GP, how can the NHS not share your information?
donagga
Community Member 7 years agoI think you are missing the point of the question. Sharing data within the NHS, as you rightly point out, is necessary for the running of the service. The discussion point is whether sharing of personal data *between* different public...
Show full commentI think you are missing the point of the question. Sharing data within the NHS, as you rightly point out, is necessary for the running of the service. The discussion point is whether sharing of personal data *between* different public services/bodies is supported, e.g. between your local council and tyhe NHS, and further whether this data should also be shared with private sector companies who might deliver some of those services.
Show less of commentIjip
Community Member 7 years agoHi Donagga, I gave a patient pathway not who the NHS shares the data with. As the question didn’t set out what is already being shared between the NHS and Social Care (councils) can I suggest you look at:
https://digital.nhs.uk...
Show full commentHi Donagga, I gave a patient pathway not who the NHS shares the data with. As the question didn’t set out what is already being shared between the NHS and Social Care (councils) can I suggest you look at:
https://digital.nhs.uk/information-governance-alliance/resources/inform…
To give you an idea of what is already being shared between the NHS and Councils.
I agree with a lot of the members, the question is too vague and doesn’t explain what data Is already shared, who with and why. Maybe that’s the real issue; without people understanding what is already going, real issues can be glossed over with vague questions!
Show less of commentgflbrown
Community Member 7 years agoLocal authorities and public service ---- not sure this is necessary. But the bare minimum data or summary data, yes, with strict controls.
With private sector, absolutely not. That would inevitably become commercial. Even if done in...
Show full commentLocal authorities and public service ---- not sure this is necessary. But the bare minimum data or summary data, yes, with strict controls.
With private sector, absolutely not. That would inevitably become commercial. Even if done in good faith today, it sets a precedence for the future. The temptation for a future government or company to gain profit from it can be hard to resist. Surely council can provide waste and recycling services without the need for private sector? The public sector needs to be able to handle these challenges without outsourcing. We ought to tackle the problems ('challenges') head on, and not look for / pay someone else to deal with because that's the easy option.
Show less of commentPeter Brown
Community Member 7 years agoTotally agree with you
talk_london_us…
Community Member 7 years agoThe idea is good in theory if we wish to improve the quality and efficiency of public services. However public services have a very long way to go improving their capability to keep data confidential and to protect that data from hackers...
Show full commentThe idea is good in theory if we wish to improve the quality and efficiency of public services. However public services have a very long way to go improving their capability to keep data confidential and to protect that data from hackers. Therefore, in practical terms, sharing data is probably not viable.
Show less of commentDaveg328
Community Member 7 years agoSharing personal data is necessary but should be kept to a bare minimum. It is only a matter of time before that data is hacked or leaked. Government and private sector are equally incompetent when it comes to cyber security as has been...
Show full commentSharing personal data is necessary but should be kept to a bare minimum. It is only a matter of time before that data is hacked or leaked. Government and private sector are equally incompetent when it comes to cyber security as has been demonstrated on an almost daily basis.
Show less of commentAnonymous - account deleted
Community Member 7 years agoNo, I absolutely don't trust the London Authority or any public or private sector organization to share my data responsibly, and so I want very restrictive limits. There have been so many examples of government and other public...
Show full commentNo, I absolutely don't trust the London Authority or any public or private sector organization to share my data responsibly, and so I want very restrictive limits. There have been so many examples of government and other public organizations misusing private data, whether intentionally because they have no respect for privacy, or through carelessness. Why would anyone trust them?
The private sector is just as bad - in fact as far as tech companies go, even worse.
Show less of commentAnonymous - account deleted
Community Member 7 years agoHa, no chance! Local authorities will only use the data to come up with reasons to tax us even more in the name of various manufactured epidemics.
jacekwojt
Community Member 7 years agoWould not trust NHS or my local council with anything but the absolute necessary minmum in terms of my data.
Show full commentTo many people invloved, to many options for a mistake.
Would not trust NHS or my local council with anything but the absolute necessary minmum in terms of my data.
Show less of commentTo many people invloved, to many options for a mistake.
Bernard
Community Member 7 years agoI am more interested in the role of the NHS in addressing the mental health issues leading to record levels of knife and gun crime. What is the mayor doing about the murder rate in London? Anything at all?
Show full commentAny data to be shared relating to...
I am more interested in the role of the NHS in addressing the mental health issues leading to record levels of knife and gun crime. What is the mayor doing about the murder rate in London? Anything at all?
Show less of commentAny data to be shared relating to drug pushing and abuse and the consequences is welcome. Can't be shared enough. Action to be taken now, not next year.
Linda Snell
Community Member 7 years agoNo personal data should not be shared and absolutely never with private sector who operate on a profit making basis and are therefore not to be trusted.
Peter Brown
Community Member 7 years agoTotally agree with you.
Hudster
Community Member 7 years agoAlso totally agree.