Data sharing
Do you trust local authorities and public services to share data with each other or with the private sector?
Do you trust local authorities like your council and public services such as the NHS, to share data with each other to improve services?
Do you trust them to share your data with the private sector to meet city challenges, e.g. waste and recycling collection?
Why or why not?
The discussion ran from 13 March 2018 - 14 September 2018
Closed
Want to join our next discussion?
New here? Join Talk London, City Hall's online community where you can have your say on London's biggest issues.
Create a Talk London accountAlready have an account?
Log into your accountwc087289
Community Member 6 years agoFor the most part I do, but they need to get better at it, employing a good holistic team of statisticians, economists and modellers, etc.
Talk London
Official Representative 6 years agoThanks everyone for sharing your views and concerns. A few more examples of how data could be shared are:
- using data to encourage walking and cycling and steer citizens away from air pollution hotspots
- bringing health and social care data together to help professionals understand when people need to be in hospital or in care, and making those decisions predictable and transparent to those getting care at home and their families
Can you think of any data sharing examples that would have a positive outcome?
Talk London
Anonymous - account deleted
Community Member 6 years agoI want joined up data sharing between all public services however, with the private sector having so many contractual relationships with the NHS, local councils, etc there needs to be some kind of oversight that will govern all this with...
Show full commentI want joined up data sharing between all public services however, with the private sector having so many contractual relationships with the NHS, local councils, etc there needs to be some kind of oversight that will govern all this with our interests as number 1 priority.
Show less of commentAnonymous - account deleted
Community Member 6 years agoThere is already far too much obligation on US, the people, to provide data by law to government organisations, they then
1. charge to public to see it
2. and/or sell it, in bulk, to private organisations.
1 is wrong if we are obliged to...
Show full commentThere is already far too much obligation on US, the people, to provide data by law to government organisations, they then
1. charge to public to see it
2. and/or sell it, in bulk, to private organisations.
1 is wrong if we are obliged to provide it free of charge by law.
2 is totally NOT ON at all, it is our data and not theirs to sell.
Data is far too often as treated by government as theirs, it is not, it belongs to the individual.
For example Land registry and Electoral Registrars selling it in bulk or the DVLA that permits parking cowboys to access it.
The good thing with GDPR is we no longer have to opt out, we have to opt IN, so the default position is reversed and the power remains with us if not specifically agreed otherwise, I doubt many public bodies are aware of that particular requirement and they are in for a wake up call, as usual even with several years advance warning of EU GDPR coming into effect they have done nothing until the last minute, in a panic and will get it wrong, as usual.
GDPR has come about because good practice has not been practised and it is long overdue, our government would never have initiated this, they still believe our data belongs to them and do with it as they want or think fit, not any longer, wait for the compo lawyers appearing (the PPI cash cow is running out so they need a new one).
NHS sharing within the NHS is the ONLY major one I agree with, it makes sense as we are not locked into our homes, as much as the government might like that "Big Brother" idea, but move around and therefore our local records need to be accessible anytime day or night, wherever we might fall ill or be injured.
We are supposed to be living in a democracy but the bureaucracy is continually eroding our rights and freedoms using the "efficiency" reason, it never is, control is the real reason behind it.
Show less of commentbob
Community Member 6 years agoBig Brother is watching us .
Welsh allan
Community Member 6 years agoBodies such as NHS, Local Govt need information to provide services. Do not agree for private companies to share our data as they cannot be trusted whatsoever.
Anonymous - account deleted
Community Member 6 years agoI don’t think private or public organisations can be trusted with personal data unless sharing is strictly controlled and with clear consent from the individual. A blanket consent like those in the legal fine print is cheating the system...
Show full commentI don’t think private or public organisations can be trusted with personal data unless sharing is strictly controlled and with clear consent from the individual. A blanket consent like those in the legal fine print is cheating the system. No one has time to read the full T&C and organisations are taking advantage of this vulnerability. I’d like to see an email request being sent to me for giving consent in each instance of data sharing which is deemed a separate case.
Show less of commentGoffchris
Community Member 6 years agoAs a school employee, we are greatly restricted in our use of personal information, and under threat of extremely strong fines if we misuse or lose personal information. Local councils, government agencies and corporations should be under...
Show full commentAs a school employee, we are greatly restricted in our use of personal information, and under threat of extremely strong fines if we misuse or lose personal information. Local councils, government agencies and corporations should be under the same tough restrictions. They should only be allowed to collect information that is relevant to their work, purge unneeded information immediately, and face criminal and civil penalties for sharing data without the expressed permission (not an "agree" button at the end of a long legalistic page of text) of the user. Then there should be no right to further propagate that information beyond the approved use.
Show less of commentbigchris
Community Member 6 years agoData should not be shared full stop.
DPJ777.
Community Member 6 years agoNO WAY! THE WHOLE SYSTEM PRIVATE OR PUBLIC ARE ALL CORRUPT. DPJ777.
Robert.fraser
Community Member 6 years agoOk. I’m not fuming any more about the betting scam I’ve just discovered when I don’t even gamble. Perhaps I would agree to a council asking me to share info for a specific task only.
Anonymous - account deleted
Community Member 6 years agoNo organization can guarantee to keep personal data secure; and there are too many people trying to access official data illegally. Data should not be shared, because it's far too risky and your personal information can end up anywhere...
Show full commentNo organization can guarantee to keep personal data secure; and there are too many people trying to access official data illegally. Data should not be shared, because it's far too risky and your personal information can end up anywhere. Only provide the minimum details to meet specific requirements.
Show less of commentAnonymous - account deleted
Community Member 6 years agoIf the data was shared solely between public bodies (e.g. NHS and the council) I would have fewer issues. However, given the private sector's increasing involvement in the public realm, my answer is no. If any of the tech companies were...
Show full commentIf the data was shared solely between public bodies (e.g. NHS and the council) I would have fewer issues. However, given the private sector's increasing involvement in the public realm, my answer is no. If any of the tech companies were involved, definitely no.
Show less of commentgrahamecain
Community Member 6 years agoIn principle, the sharing of data can have many beneficial uses, but this comes with many caveats.
Show full commentFrom recent events we are all aware of how this has been abused. Unfortunately, as things stand, this abuse can be engineered by taking the...
In principle, the sharing of data can have many beneficial uses, but this comes with many caveats.
Show less of commentFrom recent events we are all aware of how this has been abused. Unfortunately, as things stand, this abuse can be engineered by taking the seemingly most innocuous data and manipulating it in order to reveal things about an individual that even the individual was not really aware of. In such a climate any sharing of data is dangerous and should not be permitted.
The authorities have been slow to regulate this matter and until proper legislation and controls are in place nothing should be shared about individuals. A necessary part of this process will be the requiring of stated agreement by each individual to share their data and a clear explanation of exactly what information will be shared and how it will be used. Once used for the single specific purpose ,it should then be automatically deleted. I might be happy with that!
EVA1NS
Community Member 6 years agoYes, provided that in each instance of sharing I am given the opportunity to approve or not. The more specific the request, the more likely I am to approve. I would like to see all the data before giving approval.
Robert.fraser
Community Member 6 years agoNo. I want as much direct control of my data as possible. Less sharing hopefully means the chance of some geek having access to all my business at one time and may even sabotage at will.
Show full commentI hate the private sector (Amazon, Google, PayPal etc...
No. I want as much direct control of my data as possible. Less sharing hopefully means the chance of some geek having access to all my business at one time and may even sabotage at will.
Show less of commentI hate the private sector (Amazon, Google, PayPal etc.) sharing my info with anyone.
As you read this I’m being charged by a big gambling organisation £38 ... and I don’t gamble. Never even tempted to contact such bodies.
I’ve been away and come back to this worry. I think only one payment has been done, so far.
I want no sharing of data by law and don’t even ask for permission to share.
seanbrail
Community Member 6 years agoOnly in a blockchain-based system where I can track my data and ensure it is anonymised and utilised using my own rules. All personal data should be handled this way regardless of who is using it or for what reason.
Anonymous - account deleted
Community Member 6 years agoVery vague question. Poorly worded. I would never trust any local authority (ie Council) to "share" my data, though they have sold my family members data via their the electoral register at age 18 before we even had a chance to opt out of...
Show full commentVery vague question. Poorly worded. I would never trust any local authority (ie Council) to "share" my data, though they have sold my family members data via their the electoral register at age 18 before we even had a chance to opt out of it. That explains EXACTLY why I would not trust them. And who are "they" anyway - who decides which council employees have the right to access what data? They have too much power to snoop already under RIPA. You just know they are going to leave it all in a parked car or get hacked - or use it in an unintelligent way or sell it. As for the NHS, I remember how their grandiose plan "connecting for health" was given up. It's quicker and simpler for any professional doctor to perform his own assessment of a presenting patient than to look instead at load of past computer history. I have no objection to NHS DOCTORS sharing my medical info. In no circumstances should it be shared with the clowns at the council. You must be kidding - they should be expressly presented by law from engaging in any form of data sharing/broking.
Show less of commentneilprior
Community Member 6 years agoDo I trust public services with my personal data ? Probably not; but perhaps no more or less than private companies who collect my data on a daily basis - Amazon, Google etc.
However, sharing data with appropriate controls in place is...
Show full commentDo I trust public services with my personal data ? Probably not; but perhaps no more or less than private companies who collect my data on a daily basis - Amazon, Google etc.
However, sharing data with appropriate controls in place is surely necessary for public services to plan for future and learn from the past. This is not a black and white issue. The retention and sharing of data needs to consider the nature of the data and the risk of harm to individuals if the data fall into the wrong hands.
I strongly support the use of anonamised data by public services for strategic planning purposes.
Show less of commentAnonymous - account deleted
Community Member 6 years agoNHS & Social care need to share data to provide a good service however security is a low priority. I have several colleagues and friends working in this sector. Most are unaware of the risks and have no knowledge of GDPR.
Show full commentI would trust the...
NHS & Social care need to share data to provide a good service however security is a low priority. I have several colleagues and friends working in this sector. Most are unaware of the risks and have no knowledge of GDPR.
Show less of commentI would trust the private sector as much as I would trust Mr Z to be honest about the dodgey practices of FB.